Our Buddy's a skilled, high functioning Down syndrome young man who struggles daily with a skin condition (over 80% of his body being affected) that just doesn't give him any relief. There are trial programs of injections that offer some improvement but the medications come with a huge lists warning of serious side effects. What a dilemma!
There are days now when he can hardly walk. The pain in his right knee is severe. If only I knew a way to help. I am saddened by his suffering but must not show it. He is so brave and I must be too. But it is hard.